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May is Ichthyosis Awareness Month

Understanding Ichthyosis:

Raising Awareness for a Rare Skin Condition
Dry, scaly skin may seem like a minor concern—but for individuals living with ichthyosis, it’s a lifelong condition that can impact comfort, confidence, and overall well-being. This month, we’re shining a light on ichthyosis to increase awareness, understanding, and support.

What Is Ichthyosis?

Ichthyosis refers to a group of skin disorders that cause the skin to become dry, thick, and scaly. There are more than 20 different types, ranging from mild to severe. The most common form, ichthyosis vulgaris, affects about 1 in every 250 people.

What Causes It?

Ichthyosis is caused by a genetic mutation that affects the skin’s ability to shed dead cells properly. Instead of naturally sloughing off, skin cells build up leading to dryness, scaling, redness and irritation.

Signs & Symptoms

Symptoms can vary, but commonly include:

  • Dry, rough, or thickened skin
  • Flaking or scaling
  • Itching and discomfort
  • Cracked skin that may lead to infections

In more severe cases, individuals may also experience overheating, reduced sweating, or increased risk of infection, making daily management essential.

Living With Ichthyosis

While there is no cure, many people manage their symptoms with consistent skincare routines, including:

  • Daily moisturizing and hydration
  • Bathing and exfoliation to remove scale buildup
  • Medicated creams or prescription treatments for more severe cases

These approaches help improve skin comfort and support a better quality of life.

Why Awareness Matters

Although some forms are relatively common, moderate to severe ichthyosis remains rare, affecting approximately 5–10 people per 100,000 in the U.S.

Because ichthyosis is a visible condition, it can sometimes lead to misunderstanding or unwanted attention. What may look unfamiliar to others is simply part of someone’s everyday experience.

Raising awareness helps shift that perspective. With greater understanding comes greater empathy—and an opportunity to create environments where people feel respected, included, and at ease.

By increasing awareness, we can:

  • Encourage early diagnosis and care
  • Support individuals and families navigating the condition

How You Can Help

  • Educate yourself and others about ichthyosis
  • Support organizations such as the Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.) advancing research and care
  • Foster empathy and understanding for those with visible differences

A Shared Commitment to Care

At FirstService, we believe in supporting the health and well-being of the communities we serve. Raising awareness for conditions like ichthyosis is one way we can continue to foster inclusive, informed, and compassionate environments for everyone.

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